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   07/10/2014 | Nate Simons Rockin' His Extra Chromosome
         The MDSC
        

Gotta love Nate Simons rockin' his extra chromosome at the Spearhead concert last fall. Maybe Nate will do it again when Michael Franti and the band return to Boston July 18?

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   04/30/2014 | Team Wagoner's Boston Strong Adventure
         by Jim Wagoner
         ...
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   04/08/2014 | 65-year-old Calif. Dad to Run Boston Marathon Pushing His Son with Disabilities to Make him Smile
         PR Web
        

65-year-old Jim Wagoner and his family are traveling by motor home from California to run the Boston Marathon pushing his son Colby, 18, who has physical and intellectual disabilities. Jim will be pushing more than twice his weight for 26.2 miles of a notoriously grueling course, all because it makes Colby visibly excited to run and to raise critical funds for the Massachusetts Down Syndrome Congress.

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   03/31/2014 | 2014 Annual Report
         The MDSC
        

In our first meeting of the day, MDSC Executive Director Maureen Gallagher highlighted the many accomplishments of the MDSC this past year by delivering the Annual Report to our membership. She shared updates about MDSC's programs, advocacy efforts, public awareness initiatives, financial status, and strategic direction and thanked MDSC members for their extraordinary support that has made this all possible.

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   03/29/2014 | Walk in My Shoes
         Gloucester Times
        

All students face various difficulties and challenges while in schools. For those with special education needs, this could be more so. The Special Education Parent Advisory Council is hosting an event Monday, April 14, called “Take a Walk in My Shoes.”  The guest speaker is Sarah Cullen, family support director for the Massachusetts Down Syndrome Congress.

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   03/28/2014 | Champions Conference Photos
         The MDSC
        

Thanks to the many talented photographers who volunteered to shoot our 30th Annual Champions Conference and who captured the spirit of our event. 

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   03/27/2014 | Newton North Boys Basketball Coach Honored as Educator of the Year
         Newton Tab
        

On the night of Jan. 25, Brendan Durkin held court in the pressroom of TD Garden. He answered questions from the media. He broke down his last-second shot. He made bold predictions about the road that lay ahead for the Newton North boys basketball team.

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   03/25/2014 | Boston Marathon Runner will Aid Down Syndrome Awareness
         Norwich Bulletin
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   03/23/2014 | Down Syndrome Conference Touts 'Champions
         Worcester Telegram
        

The 15-year-old girl with Down syndrome had eagerly awaited the hustle and bustle of Saturday's 30th annual Massachusetts Down Syndrome Congress at the DCU Center. Amy Polewarczyk of Sterling had difficulty sleeping Friday. 

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   03/22/2014 | MDSC Featured on WGBH Digital Mural for Champions Conference
         WGBH
         ...
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   03/20/2014 | Gendron to Receive Media Award from Down syndrome Organization
         Burlington Patch
        

Burlington’s Kyle Gendron will be honored with the MDSC’s Media Award on Saturday in Worcester for volunteering his time to photograph events for the MDSC and our partner organizations during the past three years. Kyle has been an unsung hero of the MDSC’s success in reaching a broad audience with our message of inclusion, empowerment and acceptance for people with Down syndrome.

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   03/19/2014 | Fresno Dad Pushing Disabled Son in Boston Marathon
         Fox 26 Fresno
        

On April 21st, the country's eyes will turn to Massachusetts, for the Boston Marathon, one year after the bombing that killed three people and injured more than two hundred. "Boston Strong" is what they'll say - and few race participants will exemplify that better than a pair of Fresnans, Jim and Colby Wagoner.

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   03/17/2014 | Nope, it's not the Marathon yet, Zakim to glow blue and yellow for Down syndrome
         Boston Globe
        

The day after Friday's commemmoration on the Zakim, the Massachusetts Down Syndrome Congress will hold its 30th annual conference in Worcester ...

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   03/17/2014 | Zakim Bridge to be lit symbolic colors of Down syndrome on World Awareness Day
         Globe Newswire
        

BURLINGTON, Mass., March 17, 2014 (GLOBE NEWSWIRE) -- The Leonard P. Zakim Bridge, the iconic landmark that overlooks parts of downtown

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   03/17/2014 | Parents of Children with Down syndrome support each other through First Call program
         Hartford Courant
        

Bristol mom Samantha Myers didn't know her son had Down Syndrome until he ... in the program, modeled after a similar concept in Massachusetts.

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   03/12/2014 | Self Advocate Diana Ortiz Has Spirit
         Boston Globe
        

Diana Ortiz’s pin-straight hair swishes against the back of her red and white cheerleader uniform as she steadies one leg and then the other on the bent knees of two teammates, readying for a pyramid pose. Once balanced, she breathes in, lifts her arms skyward in a perfect V, and breaks into a smile so wide it makes her mother tear up watching her. Ortiz has Down Syndrome. And although there are a growing number of students with developmental disabilities participating in sports — and a cheerleader with Down Syndrome on the TV show “Glee” — there are not many real-life cheerleaders like her.

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   02/26/2014 | DNA Blood Test Can Detect Prenatal Problems
         Boston Globe
        

The research published Wednesday is the first US study to compare these new genetic tests with current screening tools in large numbers of low-risk pregnant women. It found the new tests produced far fewer false positive readings. A large new study led by Boston researchers shows that a simple blood test is more accurate than the standard methods to screen for chromosomal abnormalities such as Down syndrome in a fetus, paving the way for a new generation of prenatal genetic tests to be offered to all pregnant women.

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   02/23/2014 | West Roxbury Native Fights or those with Special Needs
         West Roxbury Transcript
        

Her sister Patty, 37, was born with Down syndrome at a time when services weren't as readily ... In addition to her past budgeting work, she is on the board of the Massachusetts Down Syndrome Congress and also serves on the ...

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   02/23/2014 | Self Advocates Reilly and Anton Conquer the Hill
         MetroWest Daily News
        

Reilly, a member of the Self-Advocate Advisory Council at the Massachusetts Down Syndrome Congress, also speaks at events and gives talks to ...

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   02/19/2014 | A Mother & Sister Give Back
         Brookline Wicked Local
        

In addition to her past budgeting work, she is on the board of the Massachusetts Down Syndrome Congress.

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   02/19/2014 | Close to Sochi, Boy is Saved by Loving Down Syndrome Community
         Russian Family Flies to Germany for Life-Saving Heart Surgery
         The MDSC
        

Sometimes, in our compassionate, close knit Down syndrome community, it doesn’t just take a village to care for a child, it takes a global village. On May 30, 2012, in Stavropol, Russia, not far from Sochi, where the Winter Olympics are underway, Dasha and Alexey Garafonov gave birth to a son, Peter, who has Down syndrome. Today, the Garafonovs are getting on a plane to Germany, where Peter is scheduled to have a life-saving surgery on Feb. 25, 2014.

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   02/11/2014 | McQuaid, Bruins Give Young Leukemia Survivor with Down Syndrome Unforgettable Day
         CBS Boston
        

When they’re playing in games, NHL players are a fearsome bunch. But when they’re off the ice, they’re some of the most generous athletes you could ever find. That much was easy to see earlier this month, when Adam McQuaid, his teammates and the entire Boston Bruins organization helped give a 7-year-old boy the thrill of a lifetime.

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   01/29/2014 | Meet the 2014 Boston Marathon 'MDSC Champions' Team
        

Each year, Team MDSC raises significant awareness and funds that directly support our programs and services, such as Parents First Call, AIM: Teen and Young Adult Program, the Self-Advocate Advisory Council, and our local and national advocacy efforts to improve the lives of all individuals with Down syndrome. Our runners are passionate, self-less, and dedicated individuals who want to raise awareness and funds for the MDSC so we can improve the lives of people with Down syndrome. Read all about these remarkable individuals here.

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   01/08/2014 | Parents of Children with Down Syndrome Mentor other Parents
         Charlotte Observer
        

The goal of First Call is to provide parents with accurate, unbiased information, said Terri Leyton, the association’s program director. “We are not pro-choice. We’re not pro-life. We are pro-information. We want you as a parent to make an informed decision … based on what we know of our life as a parent of a child with Down syndrome.”

Since January, the program, adopted from a similar one in Massachusetts, has trained 20 mentors who have been matched with 13 new parents.

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   12/20/2013 | Genesis Foundation Helps Mom of Boy with Down Syndrome
         Boston Herald
        

Tami Cobbs had picked up her son’s birthday cake and was rushing to get 7-year-old Kolongi, who has Down syndrome, when her car broke down. But that wasn’t going to stop the single mother living paycheck to paycheck. She called a tow truck, got a rental car, and picked up Kolongi with the cake in hand, all “without having a nervous breakdown along the way,” she said. “It ended up being a great birthday,” said Cobbs, 45, of Needham.

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   12/12/2013 | Student with Down syndrome leaves mark on Marblehead-Swampscott flag football game
         Marblehead Reporter
        

Among those in attendance for many of this year’s Powder Puff practices, sometimes in bitter temperatures, was Mary Cuffe, a member of the Class of 2014 with Down syndrome. As those who have gotten to know Cuffe, a student in the Marblehead schools since kindergarten, a little cold weather is hardly the type of thing that could knock the smile off Cuffe’s face.

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   12/12/2013 | Walsh, Craven honored by Friends for Children
         Dorchester Reporter
        

Mayor-elect Martin J. Walsh and UMass Building Authority Executive Director Katherine Craven were named Man & Woman of the Year by Friends for Children.  The two were honored for their many years of dedication and leadership on issues affecting children. Craven, who has a sister and a son with Down Syndrome, is on the Board of the Massachusetts Down Syndrome Congress and is a long-time advocate for children with special needs. Mayor-elect Walsh is a long-term Friends for Children Board member and advocate.

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   12/10/2013 | Down Syndrome Diagnosis - Find Support, Not Propaganda
         She Knows Parenting
        

When the Massachusetts Down Syndrome Congress (MDSC) team established its Parents First Call Program to provide 24/7 support to families receiving a prenatal or at-birth diagnosis of Down syndrome, they knew what they were up against — outdated information available and agenda-driven pressures. MDSC pushed forward, determined to make it work. Today, the MDSC has trained parents nationwide for local Parents First Call Programs with an emphasis on support and information, not pressure or dramatization. It's not about talking a parent into keeping a child with Down syndrome — it's about making sure that parent has accurate information about what having a child with Down syndrome really means

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   12/10/2013 | DC Dialogue: Insitute for Community Inclusion
         New England Cable News
        

MDSC Self Advocate Advisory Council member Ashley Wolfe recently appeared on NECN's DC Dialogue where she talked about her work at the Institute for Community Inclusion. The ICI has wonderful programs that help people with disabilities find employment. The show goes on to cover the many benefits that people with disabilities bring to the workplace- great coverage.

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   12/09/2013 | Katherine Craven named "Woman of the Year"
         Boston.com
        

Mayor-elect Martin J. Walsh and Katherine Craven, executive director of the UMass Building Authority, were recently honored by the Dorchester-based non-profit Friends for Children. With a mission to support children and families in need, the group has worked in Boston for over 30-years. Walsh was named the “Man of the Year” by the organization for his long-time partnership with the group as a board member. Craven was named the “Woman of the Year” for her work with the Massachusetts Down Syndrome Congress. 

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   12/08/2013 | Spotlight - GoTeam21
         2013 AKC/EUKANUBA NATIONAL CHAMPIONSHIP
        

The AKC National Championship talks to the leaders of GoTeam21, including Dave Skoletsky, Sharlene Grant and their daughter Eve, who has Down syndrome. GoTeam21 is a steadfast supporter of the MDSC. 

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   12/01/2013 | Man with Down Syndrome Inspires Boston Bruins
         New England Sports Network
        

MDSC Self Advocate Advisory Council member John Dunleavy was recently featured on NESN's Behind the B, a show all about the Boston Bruins. John is a full-time office assistant with the Bruins and was recently invited to give a pep talk to the B's before their game against the Columbus Blue Jackets. John told the team to keep their heads in the game and focus. He said having Down Syndrome does not hold him back because he is focused. The Bruins went on to victory in dramatic fashion, scoring their winning goal in overtime.

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   11/24/2013 | 14th Annual Luncheon Celebrates Life with Down Syndrome
         Watertown Daily Times
        

In addition, Dr. Brian Skotko, a board-certified medical geneticist, co-director of the Down Syndrome Program at Massachusetts General Hospital and co-author of an award-winning book, “Common Threads: Celebrating Life with Down Syndrome,” facilitated a workshop and addressed the guests at the luncheon. He also authored “Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters.”

Dr. Skotko’s message was simple yet profound. We all need to be a voice for persons with chromosomal differences and we need to embrace their talents and successes. Thank you Trisomy 21, Dr. Skotko and all the people who volunteered to make this gathering so wonderful.

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   11/16/2013 | Three Cheers for Colleen
         North Andover Citizen
        

Parents of people with Down syndrome are happy to see their children accepted by their peers and included in everyday activities.

That’s certainly true for Patti MacPhee, who watches with pride when her daughter, Colleen, born with Down syndrome 19 years ago, participates in fall cheerleading and winter gymnastics at North Andover High School.

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   11/13/2013 | How Down Syndrome may help understand Alzheimer’s disease
         Saludify
        

“It’s a tantalizing and provocative question: Do people with Down Syndrome hold the key to the mystery of Alzheimer’s development?” Dr. Brian Skotko, co-director of the Down Syndrome Program at the Massachusetts General Hospital in Boston, said in a telephone interview. “And what can we learn from those with Down Syndrome that will benefit the rest of the population?”

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   11/01/2013 | What Does Prenatal Testing Mean for Japan?
         Yomiuri Shimbun
        

SAAC Member Kate Bartlett and Melanie McLaughlin and her two daughters (including Gracie, who has Down syndrome) appeared in series in the Japanese newspaper the Yomuiri Shimbun. The series, about non-invasive prenatal testing, consisted of 6 stories and was published from Oct. 30th to Nov. 6th reaching a daily readership of 13.5 million, the largest circulation in the world.

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   11/01/2013 | A Gift from God
         Supported by faith and love, John Southworth defies the odds
         The Catholic Mirror
        

John, a 24-year-old Our Lady of the Elms College student with Down syndrome, has defied the odds his entire life... His parents say that he his a fighter, overcoming obstacles every day. 

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   10/31/2013 | Bedford Residents Participate in 17th Annual Buddy Walk
         Bedford Minuteman
        

Bedford student Aram Varjabedian along with his family and friends participated in the 17th annual in the Mass Down Syndrome Congress Buddy Walk & Family Festival, held in Wakefield on Oct. 13. The annual event, which raises funds and awareness for Down syndrome, has evolved into a huge festival and celebration. This year’s walk was the biggest in the events history, welcoming over 3,500 people to celebrate loved ones with Down syndrome and promote acceptance and inclusion during National Down Syndrome Awareness Month.

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   10/28/2013 | Parents of Children with Down Syndrome Mentor Other Parents
         Charlotte Observer
        

The goal of First Call is to provide parents with accurate, unbiased information, said Terri Leyton, the association’s program director. “We are not pro-choice. We’re not pro-life. We are pro-information. We want you as a parent to make an informed decision … based on what we know of our life as a parent of a child with Down syndrome." Since January, the program, adopted from a similar one in Massachusetts, has trained 20 mentors who have been matched with 13 new parents.

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   10/23/2013 | Dr. Cheryl Jorgenson to present at Special Ed Meeting
         Sentinel & Enterprise
        

Presenters Cheryl Jorgensen and Janet Sauer will speak on up-to-date research about the benefits of inclusive education, real-life stories of students educated alongside their classmates without disabilities, and suggestions for ways parents and schools can work collaboratively to make inclusion work. Jorgensen, an independent consultant on inclusive education who worked for the Institute on Disability at the University of New Hampshire for 26 years, is a frequent presenter for the Massachusetts Down Syndrome Congress.

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   10/19/2013 | Did You Know That October is Down Syndrome Awareness Month?
         North Andover Patch
        

Abigail Agudelo entered the world with strawberry blonde hair and shining crystal blue eyes. Yet, within a short hour or two, it became clear to the nurses and doctors at Beth Israel Medical Center in Boston that newborn Abigail required emergency attention. They found that she was deoxygenating (losing oxygen in her bloodstream), immediately put her on oxygen, and set to work to find out the cause for the issue. What they learned after several tests, including genetic blood tests was that Abigail had Trisomy 21, otherwise known as Down syndrome.

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   10/13/2013 | Buddy Walk & Family Festival Photos
         The MDSC
        

We are lucky to have amassed a wonderful library of photos and videos from our 17th Annual Buddy Walk & Family Festival. The photos are thanks to the talents and generosity of three volunteer photographers, Kyle Gendron, Kat Newland and Mary Ellen McDonough. See the images they captured in the photos section of our Facebook page or see the direct links to their shots below.

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   10/13/2013 | Buddy Walk raises awareness, not just money
         by Beverly Beckham
         Boston Globe
        

October is Down Syndrome Awareness Month. It is also Disability Awareness Month, Breast Cancer Awareness Month, Bullying Prevention Month, AIDS Awareness Month, and Domestic Violence Awareness Month. And the list continues. Every month is full of awareness events. I’m aware that all these events cause traffic jams. When I’m stuck on Storrow Drive or at the end of my busy street, I sometimes think, “What now?”

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   10/13/2013 | 17th Annual Buddy Walk & Family Festival Set to Break Record
         Fox 25 News
        

Massachusetts Down Syndrome Congress and their 17th annual "Buddy Walk and Family Festival" had a record-breaking day Sunday. Four-thousand people came out to Lake Quannapowitt in Wakefield Sunday. FOX 25 was a proud media sponsor, and for the second year in a row, FOX 25's Heather Hegedus, a North Shore native, was the event's emcee. The walk raises money and awareness to help children and adults with Down syndrome lead meaningful lives.

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   10/11/2013 | MDSC featured on Jimmy Carter show
         WCCM Eagle Radio
        

Jimmy Carter, a morning host on WCCM 1110 AM, Eagle Radio, broadcast out of Methuen, took time the week before the Buddy Walk to host special guests from the MDSC community. His guests were: John Anton, MDSC Advocacy Specialist; Kerri Tabasky, MDSC Buddy Walk Task Force Co-Chair; Cynthia Owens, a grandmother to an infant with Down syndrome, and a member of "Grace's A-Team"; Fran Hogan, John's support staff person

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   10/10/2013 | Top 5 Ways to Raise Awareness this Down Syndrome Awareness Month!
        

It’s October, and, while for most, that means breaking out sweaters and jackets, spending weekends raking, putting patio furniture in storage, and even decorating lawns with pumpkins, ghosts and hay bales.

However, for those of us who have loved ones with Down syndrome, the significance of this month means so much more. October is Down syndrome awareness month and this is the time to make extra effort to celebrate those we care about with Down syndrome!

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   10/10/2013 | Loring Students Celebrate Human Differences
         Sudbury Town Crier
        

SUDBURY — On Saturday, Oct. 5, Israel Loring Elementary School hosted its second annual “Little Buddy Challenge,” a second grade social action project aimed at teaching students to understand, accept and celebrate human differences. Over 100 students participated in this year’s project, which focused on encouraging students to use their strengths and abilities to help others, build effective teams and overcome challenges.

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   10/09/2013 | T-wisted Frozen Yogurt Supports MDSC Buddy Walk
         Wicked Local Sudbury
        

On Thursday, Oct. 10 from 4 p.m. to 9 p.m. T-wisted Frozen Yogurt will donate 10 percent of its proceeds to the Massachusetts Down Syndrome Congress (MDSC) 17th Annual Buddy Walk and Family Festival. Many Sudbury families be attending this event, which will be on Lake Quannapowitt in Wakefield on Oct. 13. The purpose of the Buddy Walk and Family Festival is to celebrate, promote acceptance and inclusion, and look to a bright future for the Down syndrome community in Massachusetts and beyond.

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   10/09/2013 | Amid Big News, Thousands Gather in Massachusetts to Celebrate People with Down Syndrome
         Globe Newswire & Other Outlets
        

Amid news that Down syndrome was 'silenced' in a laboratory experiment here in Massachusetts, thousands will gather on beautiful Lake Quannapowitt in Wakefield on Sunday, Oct. 13 to celebrate people with Down syndrome. The Massachusetts Down Syndrome Congress' 17th Annual Buddy Walk & Family festival is expected to bring together 4,000 people, including individuals with Down syndrome, family members and friends. The event aims to raise both awareness about Down syndrome and critical funds to support our programs and advocacy work. Rachel Coleman, founder and star of the "Signing Time!" television show is headlining the event.

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   10/06/2013 | Lynnfield Native Will Emcee Buddy Walk for 2nd Time
         Lynnfield Patch
        

Fox 25 news anchor and Lynnfield native Heather Hegedus is set to return as emcee of this year’s Buddy Walk to benefit the National Down Syndrome Society. The 17th annual Buddy Walk and Family Festival is next Sunday, October 13th at Lake Quannapowitt in Wakefield.

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   09/22/2013 | Walk Boosts Down Syndrome Awareness
         Worcester Telegram
        

UXBRIDGE — It all started as a conversation in Liora Bram's dining room six months ago. With a little planning and stroke of luck from the sun, the Central Massachusetts Buddy Walk and Harvest Fair launched its first event this Sunday at River Bend Farm. Ms. Bram, a team captain at the walk, said it was not too long ago when the Buddy Walk as just an idea. She said that 10 or so people gathered at her home in Grafton to talk about setting up an event to raise money and promote Down syndrome awareness.

 

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   09/13/2013 | Down syndrome does not define 10-year old Aram Varjabedian
         Brockton Enterprise
        

Pearlene Varjabedian was in her kitchen on an early August afternoon when her phone rang. On the other end was John Howard, the behavior management specialist for the Middlesex Sheriff's Youth Public Safety Academy (YPSA), where Pearlene’s 10-year-old son Aram was a camper. "He said, ‘Pearlene,’ your son made everyone cry at camp today." It was one of the best phone calls – and happiest days -- of her life.

 

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   08/22/2013 | As Prenatal Testing For Down Syndrome Increases, So Do Concerns About Counseling
         The Huffington Post
        

Devan Weathers was pulling into her office parking lot from a lunch break when she got the phone call from her doctor.

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   08/06/2013 | Potential End to Down Syndrome Leaves Parents Torn
         WCVB-TV Chronicle
        

In July 2013, following the surprising findings in a laboratory about the ability to 'silence' the 3rd copy of the 21st chromosome that causes Down syndrome, Amy Masters and her Chronicle team set out again to report with sensitivity and balance on the controversial topic. This time, they spoke to Self Advocate Advisory Council member Ben Majewski and his father, Andy, as well as old friends Dr. Brian Skotko and Melanie Perkins McLaughlin, as well as the researcher who made the discovery.

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   07/27/2013 | MDSC's Buddy Walk By the Sea Coming Up Fast
         Tiverton Patch
        

The MDSC Buddy Walk Program is the state’s largest public awareness platform to promote acceptance and inclusion of people with Down syndrome. The Buddy Walk by the Sea brings together the South Shore, Cape, and Islands communities for a seaside summer celebration. Funds raised from this event support all MDSC programs advocating for full, meaningful lives for individuals with Down syndrome across the state.

 

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   07/24/2013 | ABLE Act Update from NDSS
         The MDSC
        

The US Congress will adjourn for its August Recess the (entire month of August) at the end of July. As we reported on our last NDSS DS-Ambassador business meeting, we are still working through the tax reform process with both the Senate Finance Committee and House Ways & Means Committee. It’s important, because the ABLE Act is a tax bill, that we work with Committee leadership to get the ABLE Act included in any tax bill that might be developed and released this fall.

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   07/19/2013 | Newburyport Teen to Meet Justin Bieber
         Boston Globe
        

Newburyport teen Jared Bedard was able to raise over $7,000 to help fight a rare but often fatal type of tumor and earn a chance to meet Justin Bieber before the Biebs performs Saturday night at TD Garden. After Avalanna Routh, 6, of Merrimac, who developed a relation with Bieber, died last year of atypical teratoid rhabdoid tumors, the pop star promised to meet the person who raised the most amount of money to help fight AT/RT. Bedard, 16, who has Down syndrome, raised the funds within a month after starting in late May with the help of his mother, Karen. “I thought it would be good for Jared,” she said.

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   07/18/2013 | UMass Researchers Block Down Syndrome Chromosome
         Team Finds Way to Suppress Chromosome in Lab-grown Cells
         ABC News (Boston)
        

Boston--A major breakthrough in Down syndrome research could one day correct the genetic disorder.


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   07/18/2013 | Teen with Down Syndrome to Meet Justin Bieber before Boston Gig
         Globe Newswire & Other Outlets
        

Two months ago, Newburyport High School sophomore Jared Bedard heard that pop star Justin Bieber had pledged to meet the person who raised the most money to help cure a rare childhood tumor. Bedard, 16, considers himself the teen star's biggest fan, and he shares more than just the same initials with Bieber. Like Bieber, Bedard isn't afraid to dream big.

 

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   07/18/2013 | New Genetic Therapy Provides Breakthrough for Down Syndrome
         NPR's "The Takeaway"
        

Every year, 6,000 American babies are born with an extra copy of chromosome 21, the genetic cause of Down Syndrome.

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   07/18/2013 | Stem Cell Research Yields Down Syndrome Breakthrough
         Boston Herald
        

Two UMass Medical School researchers used a naturally occurring “off switch” to shut down the chromosomes that cause Down syndrome during laboratory experiments that used human stem cells, according to a press release from the school. 

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   07/18/2013 | Landmark Study on Down Syndrome Raises Ethical Issues
         Therapeutic Implications Years Away
         Marketwatch
        

BURLINGTON, Jul 18, 2013 (GLOBE NEWSWIRE via COMTEX) -- The MDSC, the leading Down syndrome organization in Massachusetts, and a national and international leader in the field of Down syndrome programming and advocacy, was excited to hear about a landmark study being published today in the scientific journal Nature.

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   07/17/2013 | In Laboratory Dish, Researchers Shut Down Extra Chromosome that Causes Down Syndrome
         Boston Globe
        

Researchers at the University of Massachusetts Medical School have shown that it is possible to do what had once seemed unthinkable—shut down the extra chromosome that causes the developmental problems and intellectual disabilities in people with Down syndrome.

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   07/17/2013 | New Genetic Therapy Could Erase Down Syndrome
         NPR's "Here and Now"
        

Down syndrome affects nearly six million people worldwide. The genetic disorder impairs physical growth and intelligence, and it can cause serious medical problems, from heart defects to early dementia.

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   07/17/2013 | Fresh Insights Into Down Syndrome
         Radio Boston
        

New research from scientists at the University of Massachusetts Medical School could revolutionize the way Down syndrome is studied and treated.

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   06/26/2013 | A Chance for Your Kids to be on the Field at Fenway!
         The MDSC
        

Talk about the chance of a lifetime… If you personally raise more than $500 for your Buddy Walk team in the next month, members of your family will be entered into a drawing for an opportunity to be on the field at Fenway Park during pregame ceremonies August 3 when Red Sox Nation recognizes Down Syndrome Nation. Who wouldn’t wanted to shout “Play Ball” just before the Red Sox take the field against the Arizona Diamondbacks or be a Batboy or Batgirl who gets the Sox dugout ready for Pedroia, Ellsbury, Ortiz and Company? Now is your chance!

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   06/07/2013 | default avatar Welcome to the site! Login or Signup below. Login|Signup HomeDaily Times ChronicleNewsReading Samantha’s Harvest 3rd Annual Run and Family Walk is Sunday
         Daily Times Chronicle
        

READING - Samantha’s Harvest will host its third annual 5K Run And Family Walk on June 9, at 10:00 A.M., the race both starting and ending at Reading Memorial High School Stadium located at 82 Oakland Street.Proceeds from this event will go to various organizations including the Massachusetts Down Syndrome Congress (MDSC) and others

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   05/29/2013 | Rock N Dock Festival Returns to Patriots Place on Thursday
        

Proceeds from the Rock-N-Dock Festival will benefit Team21, Children’s Hospital Boston Down Syndrome Programs, the Mass General Hospital Down Syndrome Program and the Massachusetts Down Syndrome Congress to help raise awareness about the importance of early intervention programs in helping children with Down syndrome live their fullest lives.

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   05/21/2013 | Samantha's Harvest Third Annual 5K Run and Family Walk June 9
        

Samantha's Harvest Third Annual 5K Run and Family Walk will take place June 9 at 10 a.m. Samantha’s Harvest, a non-profit organization devoted to enhancing the lives of individuals with Down syndrome, is hosting the walk, which will start at the Reading Memorial High School Stadium. According to a recent release, the proceeds will benefit organizations such as the Massachusetts Down Syndrome Congress (MDSC) and many others.

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   05/16/2013 | Northbridge Walks For Friend With Down Syndrome
         Northbridge Daily Voice
        

With dollars raised from the 16th Annual Buddy Walk, the MDSC can continue to fund important programs and services in the areas of research, education, and advocacy for those with Down syndrome. 

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   05/16/2013 | Northeast Down Syndrome Education Conference to be held November 30, December 1 Read more: Northeast Down Syndrome Education Conference to be held November 30, December 1
         Patriot Ledger
        

Northeast Down Syndrome Education Conference will be held for the first time at 9 a.m. Friday, Nov. 30, and Saturday, Dec. 1, at the Burlington Marriott in Burlington.

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   05/09/2013 | Life with Down syndrome is full of possibilities
         USA Today
        

The lives of the 250,000 Americans with Down syndrome today are radically different than a generation ago.

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   05/02/2013 | Chat on prenatal genetic tests
         USA Today
        

USA TODAY medical reporter Liz Szabo held a Twitter chat on the medical and ethical implications of prenatal screening. She recently wrote the article "With Down syndrome diagnoses comes a wrenching choice."

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   05/01/2013 | With Down syndrome diagnoses comes a wrenching choice
         USA Today
        

As prenatal tests proliferate and come earlier, more couples are arriving at a mediacal crossroads.

         more >>
   04/25/2013 | Senate Ways & Means Disability Line Item Requests
         The MDSC
        

Now the budget moves to the Senate, led by the Senate Ways & Means Committee and its Chair Stephen Brewer. Please start reaching out to your senators to ask for their support on these disability line items, especially if your senator is on the Ways & Means Committee. 

         more >>
   04/24/2013 | Early Decision
         TIME
        

Pregnant with her third child at 40, Melanie Perkins McLaughlin, a documentary filmmaker from outside Boston, did what many women in her situation do: after much agonizing, she had her swollen belly pricked by a long needle so her doctor could draw a bit of her amniotic fluid and tell her whether her unborn baby had Down syndrome.

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   04/24/2013 | Glee Star With Down Syndrome Receives Award
         SpecialEdPost
        

Actress Lauren Potter of “Glee” was recently honored with the first-ever Samantha Marcia Stevens Family Award of Excellence in Raising Awareness. The award was presented to the te ...

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   04/24/2013 | Five Things for Today in Westford: August 3
        

Mackenzie hopes to raise $1000 for the race, donations can be made at the  more >>

   04/24/2013 | Will a New Mass. Law Discourage Women from Aborting Fetuses with Down Syndrome?
         TIME
        

Of the myriad things that can go awry with pregnancy, Down syndrome is perhaps the best known. In the past year, several new tests have become available to detect the condition prenatally, as early as 10 weeks of pregnancy. Whether these tests are cause for celebration or alarm, however, depends upon what decision you’d make if your unborn baby was diagnosed with Down syndrome.

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   04/20/2013 | Featured Marathon Runners Safe, But Shaken By Events
         Boston Globe
        

Davis, who with husband Pransky ran for the Massachusetts Down Syndrome Congress, said by e-mail he was a half-mile from the finish when the bombs went off. He was not there yet because he had opted to start the race with friends in later groupings, forfeiting his earlier one. “Thankful I did that, as I would have been farther along and perhaps in the blast zone,” he said, adding he found Pransky minutes later. “We are both thankful to be safe.”

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   04/18/2013 | Peninsula first responder and runner share stories of Boston Marathon
         Penobscot Bay Press
        

As an athletic trainer, East Blue Hill native and George Stevens Academy graduate Stephanie Manyak has volunteered as a medic for the Boston Marathon for six years. Typically, she and other athletic trainers care for runners who, after running more than 26 miles, can have myriad injuries ranging from dehydration or over hydration to heatstroke, sprains, podiatry issues and more.

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   04/04/2013 | State Rep. Tom Sannicandro wins award for developmental disability legislation
         Boston Globe
        

State Rep. Tom Sannicandro, who represents Ashland and parts of Framingham, won a leadership award from a state-based Down syndrome organization last month for advocating policies that improve the lives of people with disabilities. The Massachusetts Down Syndrome Congress presented Sannicandro with the award at an event at the DCU Center in Worcester on March 23.

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   03/25/2013 | Pro-Choice or No Choice? North Dakota Wants to Ban Abortion for Fetal Abnormalities
         TIME
        

Testing for fetal abnormalities can alert expectant parents to potential health problems to come. And it’s the parents who should decide on how to act on those results, right?

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   03/24/2013 | As Down detection gets easier, choices harder
         Boston Globe
        

SWANSEA — On a stormy Valentine’s Day in 2007, Courtney Kane felt herself detach from her body and float up to the ceiling. She watched as the figure below, 19 weeks pregnant, reclined ...

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   03/22/2013 | Celebrating the 'Real Lives' of People With Down Syndrome
         Globe Newswire
        

On Saturday, March 23, two days after World Down Syndrome Awareness Day, the Massachusetts Down Syndrome Congress holds its 29thAnnual Conference to celebrate the "Real Lives" of people with Down syndrome. At the Conference, held at the DCU in Worcester, Massachusetts, MDSC Advocacy Specialist John Anton will make a triumphant return to the Bay State. John, 47, will receive the organization's highest honor, the Allen C. Crocker Award of Excellence. John, a native of Haverhill, Mass. has been living out a lifelong dream for the past seven weeks, advocating for disability policy at the highest level of government in Washington, D.C.

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   03/22/2013 | Mom: Down Syndrome Doesn't Change My Dreams
         CNN Health
        

"Having a baby with Down Syndrome made that 17-year-old grow up fast but strong."

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   03/21/2013 | New law will widen access to Down syndrome information
         Courier-Journal
        

Today is World Down Syndrome Day. Frankfort recently passed a law that will expand access to information about Down syndrome and at a time when it is needed most.

         more >>
   03/20/2013 | Born with Down, Westminster woman's lyrics are quite up
         Sentinel and Enterprise
        

A local woman with Down syndrome is having her song lyrics published this week in an anthology just in time for World Down Syndrome Day on Thursday.

         more >>
   03/20/2013 | Down syndrome: Is awareness overdone and action overdue?
         SheKnows
        

March 21 is World Down Syndrome Day (WDSD), recognized by the United Nations and intended to shine a broad spotlight on the most common genetic condition.Down syndromeaffects nearly six million people worldwide.

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   03/17/2013 | Mass Down Syndrome Congress Supports OHC
         The ARC Massachusetts
        

The Arc of Massachusetts is pleased to recognize the support of Operation HouseCall by the Massachusetts Down Syndrome Congress (MDSC). The program reaches two medical schools and one graduate school for allied health programs through assistance from MDSC and other donors. Learn more about the MDSC here and Operation House Call under Programs.

         more >>
   03/15/2013 | Kentucky joins Massachusetts in Expanding Information about Down Syndrome
         DownSyndromePrenatalTesting.com
        

Yesterday, Governor Steve Beshear signed into law Senate Bill 34, referred to already as “The Down Syndrome Information Bill.” The bill was patterned after a 2012 Massachusetts law. It requires that any health care professional or facility that delivers a Down syndrome diagnosis, prenatally or postnatally, also provide the family with up-to-date, evidence-based, written information and the contact information for national and local support programs and services, specifically listing Down syndrome support organizations in the law. The bill was a true example of bipartisanship.

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   03/15/2013 | Introducing the MDSC's 2013 Boston Marathon Runners
         The MDSC
        

Despite everything that happened at the 2013 Marathon, we do not want to lose sight of the amazing accomplishments achieved by each and every one of our "Team Get Real" marathoners. They were:

 

James Davis, Jeff Pransky, Sarah McKitterick, Emily LaMarca, Josefina Oliva (below), Janis Frazer, Sharlene Grant, Alan Siegel (right), Edward Hulten, Laura Perron (right), Christine Nagy, Kristine Cox, Cheryl Bechunas and Jane Bisaillon. They are truly heroes for running for such a worthy cause. Together, they raised more than $61,000 to support the MDSC and programs

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   03/15/2013 | Medford pre-schooler gains national attention in Down syndrome debate
         Wicked Local Medford
        

In many ways, Medford preschooler Grace McLaughlin is a typical 4-year-old little girl. She loves dancing to Elmo songs, reading picture books and playing with her siblings’ toys. Not so typical for a 4-year-old is the attention Grace garnered last month when she was propelled into the national spotlight in a TIME magazine article called “Early Decision,” centered around tough choices facing families like the McLaughlins when it comes to Down syndrome.

         more >>
   03/14/2013 | MDSC's Annual Conference Refutes National Magazine's Tasteless Insult
         American City Business Journals
        

BURLINGTON, Mass.March 14, 2012 /PRNewswire-USNewswire/ -- On Saturd ...

         more >>
   03/07/2013 | Blue Hill YMCA sets Benefit Zumba Sedgwick woman to raise $5,000 for Down’s Syndrome
         Penobscot Bay Press
        

Sharlene Grant, a Sedgwick resident and mother, set two goals: to run the Boston Marathon on April 15 and to raise $5,000 for the Massachusetts’s Down’s Syndrome Congress (MDSC) while doing so.

         more >>
   03/05/2013 | FOSEK Dissolves, Liam Nation Takes Over Sports Programs
         Tewksbury Patch
        

In the wake of resignations, FOSEK board members opt to dissolve organization and turn operations over to another Tewksbury non-profit.

         more >>
   03/02/2013 | Breakfast to Benefit Down Syndrome Congress
         Northbridge Daily Voice
        

NORTHBRIDGE, Mass. - A breakfast to benefit Down Syndrome Congress and Early Learning Center will be held Saturday, March 2 at the Knights of Columbus Hall, 77 Prescott St., Whitinsville.

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   03/01/2013 | What To Do In Northbridge This Weekend
         Daily Voice
        

Charity breakfast: 8 a.m. Knights of Columbus Hall, 77 Prescott St., Whitinsville. The breakfast is from 8 to 11 a.m. Donations to benefit the Down Syndrome Congress and Early Learning Center will be accepted. For more information, contact Russ Trottier atrussell.trottier@gmail.com or 617-780-1927.

         more >>
   02/23/2013 | Blood Test Detects Down Syndrome During Pregnancy
         U.S. News & World Report
        

A second company reports that it has developed a prenatal blood test to detect Down syndrome, potentially providing yet another option for pregnant women who want to know whether their unborn child has the condition.

         more >>
   02/17/2013 | Why Down Syndrome is on the Decline
         TIME
        

A little over a year ago, Abbie and Rick Smith had a baby they named Noah. They are still smarting from their obstetrician’s words after his birth. “She said, ‘I’m sorry,’” says Rick. “Everyone at the hospital treated us like it was a funeral.” Noah had Down syndrome, and neither his parents nor his doctor had been aware of his diagnosis before he was born.

         more >>
   02/15/2013 | Medical School Lands $1M Research Grant
         Worcester Business Journal
        

The University of Massachusetts Medical School has been awarded a $1-million grant that will support a DNA-focused research project aimed at treating patients with Down syndrome.

         more >>
   02/03/2013 | Daniel Gill, High School Wrestler With Down Syndrome, Wins Match Against State Champ Steven Giampapa (VIDEO)
         Huffington Post
         ...
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   01/30/2013 | Pushing the Inclusion Envelope
         The Jewish Week
        

We appreciate your recognizing Gateways: Access to Jewish Education’s work in the field of inclusion in Jewish education in your article “Kids With Special Needs To Get N.Y. School Of Their Own” (Jan. 18).

         more >>
   01/27/2013 | Camera can’t capture the inner realities
         Boston Globe
        

The pictures are ordinary. There’s Lucy in front of Cinderella’s castle. There’s Lucy on the Dumbo ride. There’s Lucy standing next to Prince Charming.

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   01/27/2013 | Marlborough girl drops puck at Down Syndrome Congress benefit
         Wicked Local
        

Marlborough resident Samantha Stevens dropped the puck for the Massachusetts Down Syndrome Congress (MDSC) eighth annual Hockey Benefit Game on Sunday, Nov. 18. Stevens, 6, has Down syndrome and other complex medical needs.

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   01/25/2013 | GWArc clients meet State House intern with Down syndrome
         Wicked Local Waltham
        

Roughly 50 developmentally disabled citizens from the Waltham area visited the State House Friday, Jan. 18, to listen to Melissa Reilly, who has Down syndrome, explain how she had come to work as an intern for Senator Jamie Eldridge.

 

         more >>
   11/19/2012 | Bruins alumni skate in Marlborough for Down syndrome
         Metrowest Daily News
        

Although the Bruins alumni players aren’t used to losing, especially in a nail-biting overtime finish, Sunday's loss to the Massachusetts Down Syndrome Congress was still a victory in the end for everyone involved.

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   11/18/2012 | MDSC 8th Annual Hockey Benefit Game with Boston Bruins Alumni!
         Marlborough Patch
        

The MDSC strives to ensure individuals with Down syndrome in Massachusetts are valued, included, and given the opportunities to pursue fulfilling lives by providing information, networking opportunities, and advocacy for people with Down syndrome and their families, educators, health care professionals, and the community-at-large.

         more >>
   11/17/2012 | Down Syndrome Congress presents Bruins alumni game in Marlborough
         Wicked Local
        

The Massachusetts Down Syndrome Congress (MDSC) is sharpening its skates for its eighth annual Hockey Benefit Game on Sunday, Nov. 18. Twenty MDSC all-stars will face off against the Boston Bruins Alumni at the New England Sports Center in Marlborough to support the Down syndrome community and raise vital funds for MDSC programs and services.

         more >>
   11/11/2012 | Book now for US Northeast Down Syndrome Education Conference
         Down Syndrome Education International
        

Book now for the Northeast Down Syndrome Education Conference at the Burlington Marriott, Burlington, MA, on November 30 and December 1, 2012.

         more >>
   11/07/2012 | Hudson Resident Skates for Hope
         Wicked Local Hudson
        

Hudson resident Don Garcia served as a referee at the Skating for Hope charity game this summer between Boston College and Boston University alumni.

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   11/03/2012 | Cancer Can't Take Away Kyle Gendron's Smile
         Boston.com
        

I met him four or five years ago in Burlington, where he lives with his wife and three children. His daughter, Mary Elizabeth, 7, and my granddaughter Lucy, 9, both have Down syndrome. So we go to the same fund-raisers and the same annual convention.

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   11/02/2012 | Fundraiser for Burlington Dad Battling Cancer
        

When Mary Elizabeth Gendron was born in November 2004, her parents already knew she was born with an extra chromosome. That chromosome was earmarked early in Kerry Gendron’s pregnancy after a Level 2 ultrasound revealed that their 20 week-old daughter had markers indicating Down syndrome.

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   11/02/2012 | Northbridge students, Scouts join friend at Buddy Walk
         Telegram Towns
        

The Massachusetts Down Syndrome Society sponsored the walk at Lake Quannapowitt in Wakefield as part of National Down Syndrome Awareness Month. The Buddy Walk is a celebration and promotion for acceptance and inclusion of individuals with Down syndrome. This year more than 250 Buddy Walks were held throughout the U.S. (a few were even held abroad), with $398,181 raised to date.

         more >>
   10/29/2012 | Marlborough family presents award to ‘Glee’ actress
         Wicked Local
        

Actress Lauren Potter of “Glee” was recently honored with the first-ever Samantha Marcia Stevens Family Award of Excellence in Raising Awareness.

         more >>
   10/20/2012 | Loring School Little Buddy Challenge
         Sudbury Patch
        

On Saturday, October 13th, on the heels of the Massachusetts Down Syndrome Congress (MDSC) 16th Annual Buddy Walk, and to celebrate National Down Syndrome Awareness Month, Loring School in Sudbury hosted its first annual “Little Buddy Challenge.”  This program was a second grade social action project aimed at teaching the Loring School Community about Down syndrome as well as accepting differences among one another.

         more >>
   10/15/2012 | Milford Family Pitches In
         Wicked Local Milford
        

On Sunday, Oct. 7, capping the first week of National Down Syndrome Awareness Month, the Marques Family of Milford joined more than 3,000 family, friends and people with Down syndrome at Lake Quannapowitt in Wakefield to celebrate, promote acceptance and inclusion, and look to a bright future for the Down syndrome community in Massachusetts and beyond by participating in the national Buddy Walk

         more >>
   10/10/2012 | Leicester Student Meets Lauren Potter Of 'Glee'
         Leicester Daily Voice
        

LEICESTER, Mass. — Leicester fourth-grader Sydney Brooks relished the opportunity to meet one of her heroes, "Glee" actress Lauren Potter, at the 16th Annual Buddy Walk and Family Picnic for the Massachusetts Down Syndrome Congress in Wakefield on Sunday.

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   10/09/2012 | Photos: The Annual MDSC Buddy Walk
         Lynnfield Patch
        

The MDSC Buddy Walk was held Sunday in Wakefield on the common.

...
         more >>
   10/07/2012 | Thousands Show Support for MDSC at Annual Event
         MyFoxBoston.com
        

WAKEFIELD (FOX 25 / MyFoxBoston.com) Thousands of people joined together at Lake Quannapowitt in Wakefield on Sunday for a good cause.

Cloudy skies weren't enough to scare away the massive g ...

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   10/04/2012 | Dig as deep as you can. Brigid’s Brigade needs your help
         ForexLive
        

Although I am not familiar with the Massachusetts Down Syndrome Congress, I do know of similar programs out in Long Island because of a family member and a close friend who’s brother is so very ‘special’. There is so much joy and innocence in their eyes that once smitten, you never forget. Just remember, every little bit will help.

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   10/04/2012 | Sudbury families to take part in Buddy Walk to raise awareness about Down syndrome
         Wicked Local Sudbury
        

“I am so sorry to tell you.”

Those were the “shocking” words Deb Cruz received from her doctor after giving birth. “It was as if I were being given ...

         more >>
   10/04/2012 | Lake Quannapowitt Is Home Base for 16th Annual MDSC Buddy Walk
         Wakefield Patch
        

Capping the first full week of Down Syndrome Awareness Month, more than 3,500 people will convene on Lake Quannapowitt this Sunday, October 7, to partake in the 16th Annual MDSC Buddy Walk, celebrating the Down syndrome community in Massachusetts and beyond.

         more >>
   10/04/2012 | Sherborn's Horigan Dye family to take part in Buddy Walk to support Down syndrome programs
         Wicked Local Sherborn
        

On Sunday, Oct. 7, capping the first week of National Down Syndrome Awareness Month, the Horigan Dye family of Sherborn will join more than 3,000 families, friends and people with Down syndrome at Lake Quannapowitt in Wakefield to celebrate, promote acceptance and inclusion, and look to a bright future for the Down syndrome community in Massachusetts and beyond.

         more >>
   10/01/2012 | Down Syndrome Awareness Month
         Mass.gov
        

Commonwealth of Massachusetts

A Proclamation

His Excellency Governor Deval L. Patrick

         more >>
   09/29/2012 | Down syndrome's rewards touted as new test looms
         NBCNews.com
        

David and Annelies Reilly had dozens of questions swirling in their minds when doctors diagnosed their newborn daughter, Melissa, with Down syndrome. Could she learn? Would she go to school? Could she ride the bus alone? Could she live a normal life? Could they?

         more >>
   09/25/2012 | Down syndrome
         Chronicle
        

At 46, John Anton is weighing a big step: moving to Washington, D.C. to pursue the next phase in his career. At 26, Melissa Reilly hopes to get her own place soon while continuing to work at the State House. Both share a passion for politics – and both have Down syndrome. In the last three decades, the outlook has changed dramatically for people born with Down: they live longer, have more independence, and participate more fully in society. Anthony Everett reports on how these developments are affecting families, and what new pre-natal testing techniques mean for the future.

         more >>
   09/14/2012 | Action for Jackson motorcycle ride in Medway Saturday
         Wicked Local Medway
        

Motorcyclists are invited to help raise money for the Massachusetts Down Syndrome Congress by riding in the second annual Action for Jackson motorcycle ride, tomorrow, Saturday, Sept. 15.

Re ...

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   09/04/2012 | Disability Awareness: Operation House Call expands
         Wicked Local Burlington
         ...
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   08/22/2012 | Wakefield Residents Meet Senator Brown
         Patch.com
         ...
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   08/07/2012 | North youngster throws out first pitch at Fenway
         Wicked Local North Attleborough
         ...
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   07/28/2012 | MDSC 2nd Annual Buddy Walk by the Sea
         Falmouth Patch
        

The Massachusetts Down Syndrome Congress will host its 2nd Annual Buddy Walk by the Sea in Falmouth, MA on Saturday, July 28, 2012. The MDSC’s Buddy Walk Program is the state’s largest public awareness platform to promote acceptance and inclusion of all children and adults with Down syndrome. People who fundraise for and participate in Buddy Walk events support all MDSC programs and services that provide hope to new and expectant parents, training to medical professionals and students, tools to educators, opportunities for self-advocates, a strong voice on Capitol Hill, and resources on all topics related to Down syndrome for anyone who needs it.

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   07/20/2012 | Ben Majewski Inspires Down Syndrome Clinics
         Massachusetts General Hospital
        

Ben Majewski, Resource Specialist in the MassGeneral Hospital Down Syndrome Program, tells clinical leaders at a national conference that they should hire a person with Down syndrome.

         more >>
   07/17/2012 | Florence man runs for group that helped his family
         GazetteNET
        

After about eight years of receiving advice, education, and support from the Massachusetts Down Syndrome Congress, Steve Hawley decided it was time to pay it back, one step at a time for seven miles.

         more >>
   07/12/2012 | Energi Wins JP Morgan Corporate Challenge T-Shirt Contest; Selects Massachusetts Down Syndrome Congress as Donation Recipient
         Energi News
        

Energi is pleased to announce that the company has been selected as the T-Shirt Contest Winner for the J.P. Morgan Corporate Challenge® in Boston, MA. In recognition of the award, J.P. Morgan will be donating $1,000USD in Energi’s name to the Massachusetts Down Syndrome Congress (www.mdsc.org), an organization close to the heart of many Energi employees. In addition to J.P. Morgan’s donation, Energi will be donating an additional $1,000USD to the organization.

         more >>
   06/28/2012 | National Buddy Walk PSA
         National Down Syndrome Society
        

The National Down Syndrome Society's Buddy Walk Program includes over 275 Buddy Walks throughout the country and in select international locations. The National Buddy Walk PSA features TV Host Nancy O'Dell, TV Host Meredith Vieira, Actor John C. McGinley, Actor and NDSS Goodwill Ambassador Chris Burke, and Actress Andrea Friedman. Join a Buddy Walk near you and promote the value, acceptance and inclusion of people with Down syndrome. Visit www.ndss.org to learn more.

         more >>
   06/28/2012 | Down Syndrome: Why Pregnant Moms in Mass. Receive Culturally Appropriate Information
         TIME
        

Of the myriad things that can go awry with pregnancy, Down syndrome is perhaps the best known. In the past year, several new tests have become available to detect the condition prenatally, as early as 10 weeks of pregnancy. Whether these tests are cause for celebration or alarm, however, depends upon what decision you’d make if your unborn baby was diagnosed with Down syndrome.

 

         more >>
   06/28/2012 | Determination Trumps Down Syndrome: No Limits for John Anton
         WCVB
        

State House lobbyist John Anton is making the move to Washington, D.C. Did we mention that he has Down Syndrome?

         more >>
   06/27/2012 | A Look at Life Today with Down Syndrome
         WCVB-TV Chronicle
        

At 46, John Anton is weighing a big step: moving to Washington, D.C. to pursue the next phase in his career. At 26, Melissa Reilly hopes to get her own place soon while continuing to work at the State House. Both share a passion for politics – and both have Down syndrome. In the last three decades, the outlook has changed dramatically for people born with Down: they live longer, have more independence, and participate more fully in society. Anthony Everett reports on how these developments are affecting families, and what new pre-natal testing techniques mean for the future.

         more >>
   06/23/2012 | Mass. Passes Landmark Prenatal Testing Bill
         The Street
        

As we have over the past nearly three decades, the MDSC ensures that all individuals in Massachusetts with Down syndrome are valued, included, and given every opportunity to pursue fulfilling lives.

         more >>
   06/22/2012 | Mass. Gov. signs bill on Down syndrome information
         Boston.com
        

BOSTON (AP) — Massachusetts Gov. Deval Patrick has signed a bill into law that requires care providers to offer up-to-date educational information to parents whose children are diagnosed with Down syndrome. The Democratic governor signed the bill Friday in a small ceremony with families, advocates and state lawmakers.

         more >>
   06/08/2012 | That's What Friends Are For
         Merrimack Patch
        

Broadway Bound to join in benefit performance for the Massachusetts Down Syndrome Congress & Massachusetts General Hospital Pediatric Intensive Care Unit. Join several regional dance schools for a fundraiser dance performance to promote a positive dance community and support local organizations.

         more >>
   06/05/2012 | Friday's Facts 060112: A New Parent's Checklist
         Up the Down Staircase
        

This is a great checklist I found for new parents of a child with Down Syndrome. It was written for parents living in the Pennsylvania area but has been edited, here, for people living in the Massachusetts area.

 

 

         more >>
   04/10/2012 | Video: Father Runs Marathon for Son with DS
         Boston Globe
        

Russell Trottier is running the Boston Marathon for his son Cole and for the MDSC. He is profiled in a video by the Boston Globe.

         more >>
   03/26/2012 | Students attend Massachusetts Down Syndrome Congress Conference
         The Newtonite
        

Senior Brendan Durkin, special education teacher Nichole Franchi and alums Ben Majewski ’09 and Brian Heffernan ’09 attended the Massachusetts Down Syndrome Congress (MDSC) Conference Saturday, March 17 in Worcester.

         more >>
   03/25/2012 | Talent Show at Massachusetts Down Syndrome Congress Conference
         Adult Down Syndrome Clinic Blog
        

Dr. McGuire and Dr. Chicoine presented at the Massachusetts Down Syndrome Congress conference on March 17, 2012. I encourage you to take a look at this video that is from the Talent Show at the conference.

         more >>
   03/23/2012 | Honoring Gene Lavanchy; Supporting Massachusetts Down Syndrome Congress
         Friends of St. Patrick Annual Luncheon
        

On Friday, March 16th the Friends of Saint Patrick held our 26th Annual Luncheon. It was a great day to get together to have a lot of laughs, sing a lot of songs and raise a lot of money for the Massachusetts Down Syndrome Congress and the Horace Mann Educational Association.

         more >>
   03/18/2012 | Putting the Spotlight on Down Syndrome
         Worcester Telegram
        

Dr. Brian G. Skotko, a clinical geneticist at Children's Hospital in Boston, was scheduled to speak at the Massachusetts Down Syndrome Congress' annual conference, which was held yesterday at the DCU Center.

         more >>
   03/17/2012 | George @ MDSC Annual Conference Young Adult Talent Show
         YouTube Post
         ...
         more >>
   03/12/2012 | 3 New Board Members Elected
         The MDSC
        

On Saturday, March 17 at the MDSC's Annual Meeting the membership voted in three new directors to our Board. Thanks to all who voted and congratulations to the new Board members. Here is more information on them:

         more >>
   02/23/2012 | Supporters Push for Flexibility in Funding for Disabilities
         Public News Service
        

Families of Bay Staters who have intellectual and developmental disabilities are cheering legislation moving through the legislature. If it passes, they hope to secure services that better meet their loved ones' needs, at minimal increased cost.

         more >>
   02/22/2012 | Boston Marathon 2012: Trottier Running for MDSC
         The Daily Northbridge
        

Russell Trottier, who grew up in Northbridge and graduated from Northbridge High School in 1999, has been a runner his whole life. "I ran for Ken Warchol who was a great inspiration and we are still friends to this day," Trottier said recently. Little did Trottier know, while a runner in Northbridge, that one day his athletc ability would one day help one of his own children - Colin Wlliam Trottier, born five months ago with Down Syndrome.

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   02/21/2012 | Talking to Time Magazine about Prenatal Testing and Down Syndrome
         Patheos Blog
        

I read a lot about prenatal testing, especially now that a company called Sequenom has developed a test that purportedly can definitively (well, with 99% accuracy) detect Down syndrome via a maternal blood sample as early as 10 weeks. Usually in the “mainstream” media, I read articles that herald advances in prenatal testing as a way to “prevent” children with disabilities from being born. ABC News reported the test as a way to avoid amniocentesis, and therefore as a way to “Cut Healthy Baby Deaths.” A New York Times article–”Sequenom’s Test for Down Syndrome Raises Hopes and Questions” offered some nuance, but it still presented the information in a purely clinical manner, whereas one of the problems with prenatal testing is that Down syndrome occurs in the context of a human being and a family. A list of statistics can never contain the reality of an individual’s limitations and possibilities.

         more >>
   02/21/2012 | Georgetown toddler's sister stands up to bullies
         Georgetown Record
        

When 15-month old Sarina Flynn was born in October 2010 with Down syndrome, one of the things that worried her parents was the fear she would be picked on in school.

         more >>
   02/21/2012 | The Down Syndrome Decision
         Teach More/Love More
        

Pregnant with her third child at 40, Melanie Perkins McLaughlin, a documentary filmmaker from outside Boston, did what many women in her situation do: after much agonizing, she had her swollen belly pricked by a long needle so her doctor could draw a bit of her amniotic fluid and tell her whether her unborn baby had Down syndrome.

         more >>
   02/03/2012 | The MaterniT21 LTD test could make people with Down syndrome a rarity
         Toronto Star
        

Nine years and one day ago, I was roused by a panicky phone call from my sister and her husband.

 

Their first grandchild, Betsy Kate Stein, had arrived 11 days early — and was born with Down syndrome.

         more >>
   01/29/2012 | A birthday wish for James
         Boston Globe
        

My friend, James Nadworny, is turning 21 the classic way, with warm wishes, birthday cake and a party bus. Because he has Down syndrome, his passage to adulthood comes with special challenges. For James, turning 21 means he is a year away from “Turning 22,’’ or Chapter 688, the state law that governs what happens when people with disabilities turn 22. From ages 3 to 22, children with special needs receive special education funding from their local city or town. If they are in day or residential schools, there is cost-sharing between the state and local municipality.

         more >>
   01/27/2012 | Cardinal Cushing Centers' Simons wins book award
         Wicked Local Hanover
        

Independent Publisher recently awarded Jo Ann Simons, president and chief executive officer of Cardinal Cushing Centers, a bronze medal in the parenting category. According to the Independent Publisher’s website, the IPPY awards “are known for recognizing excellence in a broad range of subjects and for rewarding titles that confront hot-button social and political issues.”

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   01/26/2012 | Manny Fernandes was 'example of community service'
         Wicked Local Mansfield
        

Manuel “Manny’ Fernandes arrived in America from his native Portugal at the age of 15 as the country was about to plunge into the Great Depression.

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   01/10/2012 | Fast Start for Marathon Team
        

The Boston Marathon may be months away, but Team MDSC is already leading the pack. While checking out the Vanderwildens on the John Hancock charity program homepage, scroll down to see the MDSC ranked 4th overall! 

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   10/30/2011 | Touchdown-scoring Myshrall to speak at educators forum
         Worcester Telegram & Gazette
        

Patrick Myshrall, the 17-year-old St. Peter-Marian High School junior with Down syndrome who scored a touchdown against Doherty Memorial High School Oct. 21, will be the self-advocate keynote speaker at the Massachusetts Down Syndrome Congress Educators Forum Thursday at the College of the Holy Cross.

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   10/29/2011 | Allen Crocker Obituary
         Boston Globe and other outlets
        

Allen Carroll Crocker, M.D., 85 of Natick, MA (and Gloucester, MA) passed away peacefully on Sunday October 23, 2011 at Newton/Wellesley Hospital from respiratory failure several months after surgery to treat a non-malignant brain tumor. 

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   10/26/2011 | Teen with Down syndrome scores first career TD
         7 News WHDH
        

WORCESTER, Mass. -- A high school football player’s dedication paid off during a recent game -- the 17-year-old senior with Down syndrome stuck with the team despite never playing in a varsity game.

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   10/20/2011 | New blood test for Down syndrome offered in Boston area
         Boston.com
        

Pregnant women over age 35 in the Boston area can now get a blood test from their doctor to screen their fetus for Down syndrome. The new test, made by Sequenom, was rolled out in Boston and 19 other metropolitan areas across the country on Monday.

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   10/20/2011 | The End of Down Syndrome?
         Boston Magazine
        

This week, a new prenatal test came on the market in Boston and 19 other cities across the country that allows pregnant women to provide a simple blood sample in order to determine whether her fetus has Down syndrome. The test, MaterniT21, is produced by Sequenom and can be taken by women as early as 10 weeks into their pregnancy. It has been touted as an alternative to amniocentesis and chorionic villus sampling, both of which are invasive and painful procedures that in some cases can result in miscarriage.

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   10/10/2011 | Canton Author Breaks Ground With Stories For Developmentally Disabled
        

Anne Kelleher’s latest work may be written at a third-grade level but “How David Met Sarah” is no children’s book. The story, the first in a series, is targeted for developmentally disabled adults and inspired by Kelleher’s own brother David, who has Down Syndrome.

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   09/30/2011 | Buddy Bostik to join thousands at MDSC Buddy Walk
         Daily News of Newburyport
        

Newburyport resident Buddy Bostick will join thousands at the Massachusetts Down Syndrome Congress 15th Annual Buddy Walk and Family Picnic on Oct. 9 in Wakefield.

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   09/14/2011 | The Wrentham Sportsmen's Association will offer The Action for Jackson Ride
         Attleboro Sun Chronicle
        

The town's police department is conducting a survey of residents. The purpose of the survey, Police Chief James Anderson said, is to measure the effectiveness of the department and improve services

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   09/01/2011 | The Arc of the United States awards Ashley Wolfe - MDSC Board Member - with 2011 Research in Action award in Denver, CO
         Community Inclusion
        

The Arc of the United States has awarded Ashley Wolfe with the 2011 Research in Action award. Wolfe was presented with this for her significant contributions to Participatory Action Research efforts in the field of intellectual and developmental disabilities (I/DD). Her research and work has made her a respected member of the research field and this award is an acknowledgement by her colleagues and peers of her numerous contributions to I/DD research at ICI and Boston University. This is the first year that the Research in Action award has been given.

 

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   06/05/2011 | Massachusetts Teen with Down Syndrome Manages Baseball Team
         The Herald News
        

Editor’s note: We hear so many horror stories about bullying in schools and the trouble with rude and disrespectful teenagers these days. Perhaps that’s why it was so refreshing to read about the B.M.C. Durfee High School baseball team and Scotty Strong.

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   04/06/2011 | 22 year-old student with Down syndrome works at Children’s Hospital Boston’s Down Syndrome Program
         Boston Children's Hospital
        

Have you seen this great New England Cable News story about Ben Majewski, a 22 year-old student who works at Children’s Hospital Boston’s Down Syndrome Program? Needless to say, we’re big fans of Ben’s work. To help spread the news of his many accomplishments, we’re sharing a Dream story written about him last year, right around the time when he first came on board as a Children’s employee.

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