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Find a Support Group

Whether you’re a new or expectant parent, a family of color, a sibling, father or grandparent of someone with Down syndrome, if you’re looking to connect with others in your shoes, the MDSC can help. We collaborate with more than 20 local support groups around the state.

Support Group Leaders

The MDSC has begun bringing together more than two dozen leaders in the Down syndrome community from across the state for a Support Group Leader Retreat. The group shares experiences and strategizes how to advance our mutual goal of strengthening supports for people with the Down syndrome across the state. 

African American Family Support Group (21 Shades)
Federation for Children with
Special Needs (Boston)

Roxanne Hoke-Chandler
617-399-8343
Meets Quarterly in the Boston area; Open to all family members. 

Attleboro Area
Families Supporting Families
Shannon Paul
508-695-4930
Moms night out the last Thursday of each month. 

Autism Spectrum Disorder/Down Syndrome
Down Syndrome-Autism Connection
978-394-8416
Charlotte Gray or Erin Knyff
Monthly on-line chat group to network and share resources. 

Boston Children’s Hospital Speaker Series
Down Syndrome Program
Angela Lombardo
857-218-4329
Website
Monthly, educational talks that may be attended or viewed on-line. 

Boston/Greater Boston
Moms Potluck Group
Melanie Perkins McLaughlin
617-699-1962

Berkshires Area
BCARC Down Syndrome Family Group
Jessica Dennis
413-464-7262 x12

Brockton Area
Brockton EI/BAMSI support group
Susan Stratoti
508-326-9872
Monthly Tuesday evening meetings; both informal get-togethers as well as outside speakers; children welcome at the informal meetings. 

South Bay EI support group
Rachel Thomas
781-249-0629

Complex Needs
Parents of Children with DS
and Complex Needs

Sarah Cullen
781-221-0024
Meets quarterly in Waltham with a variety of quest speakers; child care provided. 

D.A.D.S Group (Statewide)
Dads Appreciating Down Syndrome
Jeff Roback
339-788-1460
Website

Franklin Area
Trisomy 21 Club
Amy Lanagan
508-981-8895
Informal play group meets the second Saturday of the month; alternate between morning and afternoon.

Grandparents
Grandparents Support Group
Regina Kando
781-221-0024 x206 (Sarah Cullen)
Regional meetings for grandparents. 

Mosaic Down Syndrome
Support Group
Sonya Cabral
617-308-7441
Support and information for families whose child has mosaic down syndrome. 

Greater Boston
Morning Travelers Play/Support Group
Nancy Greiner
Website
Informal play group meets monthly on the third saturday of the month.

Southeastern Mass.
21 FrienDS
Kim Legendre
508-989-2706
Strong Facebook group and hosts a variety of events. 

South Shore Area
Braintree Support Group
Jeanne Zarrella
781-789-6035
Moms night out monthly; currently families have children 10-18.

South Shore Parents and Siblings of Children over 30
Taffy Nothnagle
781-383-0895

Spanish-Speaking
Familias Latinas Unidas por
el Sindrome de Down
Patria Espinal
617-953-6589
Meets montly on the first Saturday of the month; all family members welcome; currently mostly families who have a teen or an adult. 

Western Massachusetts
Down Syndrome Resource Group of Western Mass.
Joanne Charland
413-246-8410
Provides a variety of events for families with children of all ages. 
 

OUT OF STATE:

Rhode Island
Down Syndrome Society of Rhode Island
401-463-5751
Website

New Hampshire
Northern New England
Down Syndrome Congress (NNEDSC)
603-479-1589
Website

Maine
Southern Maine Down Syndrome Family Network
866-571-2223
Website

Connecticut
Connecticut Down Syndrome Congress
888-486-8537
Website

Vermont
Champlain Valley Down Syndrome Group
Lisa DeNatale
802-922-0428
Website
 

NATIONAL:

National Down Syndrome Congress
1-800-232-NDSC
Website

National Down Syndrome Society
1-800-221-4602
Website

Families of Diversity