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Down Syndrome Organizations
Massachusetts Down Syndrome Congress (MDSC)
- Parents First Call Program
Information and connections for new and expectant parents
(800) 664-MDSC or (781) 221-0024, ext. 206
scullen@mdsc.org
www.mdsc.org
National Down Syndrome Society (NDSS)
National Down Syndrome Congress (NDSC)
Down Syndrome Research and Treatment Foundation (DSRTF)
Research Down Syndrome
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Down Syndrome Clinics
MassGeneral Hospital Down Syndrome Program
Children’s Hospital Down Syndrome Program
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Prenatal Resources
MDSC Parents First Call Program
Information and opportunity to speak with a trained First Call parent
“Understanding a Down Syndrome Diagnosis”
- For parents who are in the process of making a decision regarding the pregnancy
English and Spanish in the same booklet
www.lettercase.org
Copies may be requested by calling MDSC at (781) 221-0024, ext. 206
“Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome”
Brighter Tomorrows
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Postnatal Resources
MDSC Parents First Call Program
- Information and opportunity to speak with a trained First Call parent.
- Welcome package, including books, new parent resources, and gifts are mailed to each new family.
- One-year complimentary MDSC membership given to all new families
(800) 664-MDSC or (781) 221-0024, ext. 206
scullen@mdsc.org
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Adoption Resources
National Down Syndrome Adoption Network
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Training Opportunities for Health Care Professionals
Brighter Tomorrows
- An interactive tutorial to provide physicians with current knowledge about Down syndrome, as well as the communication tools to adequately support families and prospective parents at the point of the initial diagnosis of Down syndrome.
www.brighter-tomorrows.org
Down Syndrome: Healthcare Updates for the Primary Care Pediatrician
What the Other Children Without Down Syndrome Are Thinking: Sibling Issues for the Pediatrician
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Caring for Individuals with Down syndrome
Health Care Guidelines
Down syndrome health issues
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People First Language
SheKnows.com Parenting Article
People First Language Guidelines
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