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Massachusetts Down Syndrome Congress (MDSC) Parent's First Call Program
Information and connections for new and expectant parents.
Call anytime 24/7
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MDSC Parent' s First Call Program
(800) 664-MDSC or (781) 221-0024
Contact MDSC Family Support Director Sarah Cullen at scullen@mdsc.org
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Children’s Hospital Down Syndrome Program
Sees families prenatally as well as children from birth to age 18
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Childrens Hospital Down Syndrome Program
(857) 218-4329
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"Understanding a Down Syndrome Diagnosis"
Prenatal Booklet for expectant families. Approved by the American College of Medical Genetics, the American College of Obstetricians and Gynecologists, and the National Society of Genetic Counselors.
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English and Spanish in same booklet
Contact MDSC Family Support Director Sarah Cullen at scullen@mdsc.org?
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Down Syndrome Pregnancy: On-line book for expectant families who have chosen to continue the pregnancy
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Down Syndrome Pregnancy Website
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Brighter Tomorrows
Interactive tutorial to provide physicians with current knowledge about Down syndrome, as well as the communication tools to adequately support families and prospective parents at the point of the initial diagnosis of Down syndrome.
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Brighter Tomorrows for healthcare professionals
Brighter Tomorrows for new and expectant families – English and Spanish
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"Down Syndrome: Healthcare Updates for the Primary Care Pediatrician" Online course through Harvard Medical School Dept. of Continuing Education.
Reviews latest advances in healthcare management of children with Down syndrome so that primary care pediatricians and other interested health care professionals can provide exceptional care.
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To access course, go here.
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National Down Syndrome Society
"A Promising Future Together” packet, which includes healthcare guidelines, is free to new parents.
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NDSS Website - Info in English and Spanish
(800) 221-4602
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National Down Syndrome Congress
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NDSC Website - Info in English and Spanish
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Down Syndrome Health Issues
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www.Ds-health.com
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DSAGC Adoption Awareness Program
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DSAGC Adoption Program Website
Contact Robin Steele at rsteele@zoomtown.com or 888-796-5504
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