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Researchers
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The MDSC is dedicated to ensuring that all members have information about and access to the latest research opportunities. Through working directly with researchers and scientists, the MDSC Medical and Scientific Advisory Council selects a number of studies each year that will be made available for the MDSC members to participate in if they so choose. Each research proposal received is carefully reviewed for content, ethics, and feasibility before forwarding the information onto our members. If approved, the MDSC will develop a study dissemination plan in partnership with the researcher. The MDSC is sensitive to the confidential nature of our membership information and at no time does the MDSC sell or share member information with researchers. If you are seeking participants for a research project that you would like the MDSC Medical and Scientific Advisory Council to consider, you can submit the proposal that includes the full study and IRB approval to research@mdsc.org. Current Opportunities for Participation in Research Studies Community Based Exercise Program for Adolescents with Down Syndrome
Team Up For Fitness (TUFF) is a research study funded by the National Institutes of Health and is being conducted by faculty at the UMass Medical School - Eunice Shriver Center. The TUFF study is a 12-week exercise program followed by a 12-week supported maintenance period for healthy adolescents with Down syndrome ages 13 - 21 which will run from March - August, 2012 at the West Suburban YMCA in Newton. Please click here for a flyer with more information or visit http://www.umassmed.edu/shriver/recruit/tuff.aspx . Contact Melissa Maslin at 781-642-0292 or ShriverHealth@umassmed.edu with any questions.
The transition to formal schooling is a crucial milestone for all children. The study will examine: What factors help children with ASD succeed during this challenging transition period? The goal of the study is to identify factors that promote a successful socio-emotional adaptation to school for young children with ASD. Relationships with teachers will be examined and, in turn, children’s development of language and literacy skills over time. Ultimately, this study will lead to the development of an intervention program to facilitate these children’s positive experiences and social and academic success during the transition to school. If you have any questions or you would like to be involved in the study, please call 617-287-6322 or email SmoothSailingStudy@gmail.com. This e-mail address is being protected from spam bots, you need JavaScript enabled to view it . Click here for a flyer with more information and here for a complete study description.
Dr. Libby Kumin of Loyola University Department of Speech-Language Pathology/Audiology is conducting a survey to gather information on the current employment and unemployment status for adults with Down syndrome, ages 18-50 years old. The results of the survey will provide data on the current situation as well as information which will be useful in advocating for job training programs, funding, and the need for more variety and choices in jobs. Whether you are working in a paid or a volunteer job, in a training program, or currently not working, your feedback will be helpful in gathering this important information. Please fill out the survey online at https://www.surveymonkey.com/s/RK5SWWS, or click here to print out a copy and mail the hard copy to: Dr. Libby Kumin |
The University of Massachusetts Medical School Eunice Kennedy Shriver Center will be conducting a research study to test the effectiveness of a community-based exercise program for increasing and maintaining physical fitness in adolescents with Down syndrome.
The Smooth Sailing Study, funded by the Institute of Education Sciences, is aimed at understanding the transition to school for children with autism spectrum disorders (ASD) or children who are dually diagnosed, such as children with Down syndrome and autism. Eligible participants are children between the ages of 4-7. This study is a collaborative effort between University of California Riverside and University of Massachusetts Boston.
