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Health Care Helpful Links

Down Syndrome Organizations

Massachusetts Down Syndrome Congress (MDSC)

  • Parents First Call Program
    Information and connections for new and expectant parents
    (800) 664-MDSC or (781) 221-0024, ext. 206
    scullen@mdsc.org

    www.mdsc.org

National Down Syndrome Society (NDSS)

National Down Syndrome Congress (NDSC)

Down Syndrome Research and Treatment Foundation (DSRTF)

Research Down Syndrome

Down Syndrome Clinics

MassGeneral Hospital Down Syndrome Program

Children’s Hospital Down Syndrome Program

 

 

Prenatal Resources

MDSC Parents First Call Program
Information and opportunity to speak with a trained First Call parent

“Understanding a Down Syndrome Diagnosis”

  • For parents who are in the process of making a decision regarding the pregnancy
    English and Spanish in the same booklet
    www.lettercase.org

    Copies may be requested by calling MDSC at (781) 221-0024, ext. 206

“Diagnosis to Delivery:  A Pregnant Mother’s Guide to Down Syndrome”

 Brighter Tomorrows

 

Postnatal Resources

MDSC Parents First Call Program

  • Information and opportunity to speak with a trained First Call parent.
  • Welcome package, including books, new parent resources, and gifts are mailed to each new family.
  • One-year complimentary MDSC membership given to all new families
    (800) 664-MDSC or (781) 221-0024, ext. 206
    scullen@mdsc.org
 

 Adoption Resources

National Down Syndrome Adoption Network

 

Training Opportunities for Health Care Professionals

Brighter Tomorrows

  • An interactive tutorial to provide physicians with current knowledge about Down syndrome, as well as the communication tools to adequately support families and prospective parents at the point of the initial diagnosis of Down syndrome.
    www.brighter-tomorrows.org

Down Syndrome: Healthcare Updates for the Primary Care Pediatrician

What the Other Children Without Down Syndrome Are Thinking: Sibling Issues for the Pediatrician

Caring for Individuals with Down syndrome

Health Care Guidelines

 Down syndrome health issues

People First Language

SheKnows.com Parenting Article

People First Language Guidelines