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Children's Hospital Down Syndrome Program

The Down Syndrome Program at Boston Children's Hospital was founded in 1967 and is one of the oldest and largest of its kind, offering multidisciplinary health care for individuals with Down syndrome from birth to age 22 years.   They offer highly specialized medical services and provide individualized management of complex challenges for patients with Down syndrome through an interdisciplinary clinical approach. Their team works closely with expert subspecialists at Boston Children’s Hospital.  They provide family support services and care coordination to meet the comprehensive needs of our patients.  They have developed innovative practices, including extensive neurodevelopmental and behavioral assessments and carefully designed neuropsychological testing that allow us to target and individualize developmental therapies and educational interventions for our patients in order to optimize development.

Prenatal Consultations
Confidential prenatal consultations are provided in our Advanced Fetal Care Center for families who receive a confirmed or suspected prenatal diagnosis of Down syndrome. Consultation with genetics, cardiology including fetal echocardiogram, neurology, lactation support, and other subspecialists can be coordinated.

Clinic Visits
Their team provides a comprehensive interdisciplinary evaluation for babies and young children, using an interdisciplinary team approach. Each child spends a full morning in our clinic and has individual appointments with specialists in developmental behavioral pediatrics, nutrition, audiology, physical therapy, and speech language pathology with expertise in feeding and swallowing.  Clinic visits for older children, adolescents, and young adults are customized, with consultation with a clinician in the Down syndrome program coordinated with same-day appointments for other subspecialty care such as orthodontics, audiology / ENT, cardiology, GI / nutrition, ophthalmology, sleep medicine, physical therapy, dentistry, nutrition, and others as needed.  

Additional Supports:  More than a Clinic
The Down Syndrome Program at Boston Children's Hospital offers ?families supports beyond their clinics including expert intensive care coordination, resource specialist services, workshops, and support groups.   They host the Allen C. Crocker Speaker Series which offers free presentations / webinars by experts in the field on more than 30 topics for families which are archived on our website and viewed by families and professionals nationally and internationally.

Research
In partnership with the Laboratories for Cognitive Neuroscience and the Translational Neuroscience Center at Boston Children’s Hospital, The Down Syndrome Program at Boston Children's Hospital? offers cutting-edge research dedicated to studying neurodevelopment in Down syndrome, co-occurring medical and neurodevelopmental conditions, and interventions to improve development, cognition, and overall health outcomes.  

For more information
Visit Boston Children’s Hospital Down Syndrome Program or initiate an appointment by calling 857-218-4329 or email Angela Lombardo. You can also read more in their Program Brochure