Whether you’re a new or expectant parent, a family of color, a sibling, father or grandparent of someone with Down syndrome, if you’re looking to connect with others in your shoes, the MDSC can help. We collaborate with more than 20 local support groups around the state.
The MDSC has begun bringing together more than two dozen leaders in the Down syndrome community from across the state for a Support Group Leader Retreat. The group shares experiences and strategizes how to advance our mutual goal of strengthening supports for people with the Down syndrome across the state.
Support Groups by Area
Arlington Down Syndrome Parents
North Quabbin Up Syndrome Social Group
Informal get-togethers for families of all ages with a loved one with Down syndrome including caregivers, grandparents and siblings
Trisomy 21 Club - Families Supporting Families
Mom's night out each month with quarterly playgroups.
BCARC Down Syndrome Family Group
Group meets periodically and hosts a variety of social events throughout the year
Brockton EI/BAMSI support group
Monthly Tuesday evening meetings; both informal get-togethers as well as outside speakers; children welcome at the informal meetings.
Heartbeats for Down Syndrome
South Bay EI Support Group
Meets one Saturday per month, all ages and all family members welcome.
Kim and James Newton
A group for folks on the Cape who have kids with Ds and other genetic and developmental quirks to get together, share information, have play dates and dinners, make plans and more!
Central MA Family Group
Meets every other month on a Saturday morning; families with school-age children or a prenatal diagnosis; all family members welcome.
Down Syndrome Support Group
Meets monthly on the first Saturday of the month from 10 AM - noon.
Gettin' Down in the North Shore
Informal play group for families with younger children.
Morning Travelers Play/Support Group
Private secret Facebook group supporting families of younger children with Down syndrome. Please contact email@example.com for more information and/or to be added to the group.
Somerville Down Syndrome Family Engagement Group
Lianor da Cunha Hillerstrom
A nonprofit family and support group started by parents with the same interests in mind. Meets monthly through play dates, familiy activities, seminars and informational meetings.
South Shore Area
Braintree Support Group
Mom's night out monthly; currently families have children 4-22.
South Shore Parents and Siblings of Adult Children with Special Needs
Host periodic dinner meetings to offer support and sharing.
South Shore Play Group
Quarterly playgroup at the Hanover YMCA for families of children 0-6 and their siblings.
Down Syndrome Resource Group of Western Mass.
Provides a variety of events for families with children of all ages.
Play Group for Families with Younger Children
The Down Syndrome Program Resource Group of Western MA invites families of younger children to come connect, share, learn and play. Meets every other month on a Saturday morning at Jericho in Holyoke.
Mass Inclusive Schools Initiative MISI
Melanie Perkins McLaughlin
MDSC New Family Socials
Meets every month on a Saturday morning in Burlington; families with children up to age 4; all family members welcome.
Support Groups by Topic
African American/Black Family Support Group (21 Shades)
Terri James Solomon
Monthly calls and social events; Open to all family members. Second Thursday 8-9 PM.
Autism Spectrum Disorder/Down Syndrome
Down Syndrome-Autism Connection
Charlotte Gray: 978-394-8416
Jeanne Doherty: 978-761-3950
Online chat group 2nd Monday evening of every month to network and share resources, and occasional get-togethers.
Boston Children’s Hospital Speaker Series
Down Syndrome Program
Monthly, educational talks that may be attended or viewed on-line.
D.A.D.S Group (Statewide)
Dads Appreciating Down Syndrome
Variety of DADS meetings and family events.
Grandparents Support Group
Regional meetings for grandparents.
Special Health Care Needs
Parents of Children with DS and Other Special Health Care Needs
Co-hosted with Boston Children's Hospital Down Syndrome Program. Meets quarterly in Waltham with a variety of guest speakers; child care provided.
MDSC Mental Health Support Group, Resource Page
For parents and caregivers of teens and adults with Down syndrome and mental health challenges. Every other month meetings at our office in Burlington facilitated by Mary-Frances Garber, licensed genetic counselor. Workshops with guest speaker held 2-3 times per year.
Mosaic Down Syndrome Support Group
Support and information for families whose child has Mosaic Down syndrome.
Social events for Portuguese-speaking families in the Arlington area
Familia Up Down
Host a variety of events for Portuguese-speaking families in the greater Worcester area and across MA
Organizamos uma variedade de eventos para familias de lingua portuguesa na area da grande Worcester e em toda area de MA
Familias Latinas Unidas por el Sindrome de Down
Meets montly on the first Saturday of the month; all family members welcome; currently mostly families who have a teen or an adult.
Spanish Support Group for Families Whose Child is 4 or Younger
Co-hosted with the MGH Down Syndrome Program; meets quarterly on a Tuesday afternoon at the Chelsea MGH Center. Limited child care available.
Out of State Support Groups
Down Syndrome Society of Rhode Island
New Hampshire Down Syndrome Association
Southern Maine Down Syndrome Family Network
Down Syndrome Association of Connecticut
Champlain Valley Down Syndrome Group
Down Syndrome Diagnosis Network
National Down Syndrome Congress
National Down Syndrome Society