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Down Syndrome Organizations
Massachusetts Down Syndrome Congress (MDSC)
- Parents First Call Program
Information and connections for new and expectant parents
(800) 664-MDSC or (781) 221-0024, ext. 206
scullen@mdsc.org
www.mdsc.org
National Down Syndrome Society (NDSS)
National Down Syndrome Congress (NDSC)
Down Syndrome Research and Treatment Foundation (DSRTF)
Research Down Syndrome
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Down Syndrome Clinics
MassGeneral Hospital Down Syndrome Program
Children’s Hospital Down Syndrome Program
Down Syndrome Program at UMass Memorial Children's Medical Center
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Prenatal Resources
MDSC Parents First Call Program
Information and opportunity to speak with a trained First Call parent
“Understanding a Down Syndrome Diagnosis”
- For parents who are in the process of making a decision regarding the pregnancy
English and Spanish in the same booklet
www.lettercase.org
Copies may be requested by calling MDSC at (781) 221-0024, ext. 206
“Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome”
Brighter Tomorrows
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Postnatal Resources
MDSC Parents First Call Program
- Information and opportunity to speak with a trained First Call parent.
- Welcome package, including books, new parent resources, and gifts are mailed to each new family.
- One-year complimentary MDSC membership given to all new families
(800) 664-MDSC or (781) 221-0024, ext. 206
scullen@mdsc.org
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Adoption Resources
National Down Syndrome Adoption Network
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Training Opportunities for Health Care Professionals
Down Syndrome: Healthcare Updates for the Primary Care Pediatrician
What the Other Children Without Down Syndrome Are Thinking: Sibling Issues for the Pediatrician
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Caring for Individuals with Down syndrome
Health Care Guidelines
Down syndrome health issues
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People First Language
SheKnows.com Parenting Article
People First Language Guidelines
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